✓ Girls don't get diagnosed as often, because it's more uncommon in our gender. We don't have enough books about Tourette's, and we CERTAINLY don't have enough that are as well-researched and compassionate and ACCURATE as this one. Kids need a place to jump off into learning, into understanding and accepting. And she was always as encouraging and as uplifting as Aven and her parents. She explained it at first like it gets explained in this book. Don't forget that someday you'll develop extremely strong shoulder muscles, but very tired back muscles, because of the funky way you'll tic with your neck and shoulders." Also, your basal ganglia is shaped incorrectly, which lets inappropriate impulses through more easily, thus allowing such tics as coprolalia and echolalia to be prominent in people with Tourette's. We introduce them to it, with things they can understand and grasp, even if that means it sounds a little simple at first.įor example, when my mom explained to me-at the age of seven-what I have, she didn't say, "Well, you make too much dopamine and not enough serotonin, and that makes your neurons misfire so that your muscles read it as signals to move. We don't expect kids to immediately know calculus when they're in fourth-grade math, or even eight-grade. You don't teach a kid to bake by giving them the ingredients for a souffle and telling them to figure it out. When you're talking with kids about a new topic, or one that's frequently portrayed incorrectly, you can't throw them into the deep end. You know what doesn't get talked about enough? These issues.
The brain surgery they talk about is real, and two of my three brothers have required it in order to be able to live a quasi-normal life after their tics got so bad, they couldn't even eat dinner with us. The kids in the support group, their problems are also real. Someday people will read books that talk about how hard it is to accept yourself and the pothole-ridden road that can be with something as difficult as Tourette's.īut I don't want this book to be any of those books.Ĭonnor's problems are real. We will have books someday, especially by people WITH Tourette's, that say how often they've thought about suicide and how medications don't always work for them, or how the adjustments on different meds one right after another and how discouraging that can be. There will come books that say in detail how hard it is to adjust to a life where you constantly hurt yourself by ticcing. Let me-a woman with Tourette's, OCD, ADHD, depression, anxiety, and insomnia-tell you why I appreciated that it wasn't "real" enough. It's too "cute" or "cuddly" or it's not "hard" or "real" enough. I have seen a few people in these reviews stop and take the time to say how much they disliked this book and the way it deals with disabilities.
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